Dealing With A Diagnosis
An unexpected diagnosis can be a shock, but the steps you take immediately after learning of your condition are among the most important you ll take. That s the word from doctors who say that upon being diagnosed with a disease, it is vital that people gather information about their ailment, learn their treatment options and track down experts who can help. Funded by the NIH s National Human Genome Research Institute NHGRI and the Office of Rare Diseases ORD , the center provides free access to experienced information specialists who answer patient or health care provider questions about a genetic or rare disease diagnosis in clear, understandable terms. It can also help people search for health information covering a genetic or rare disease diagnosis. Since it was established in 2002, GARD has responded to more than 16,000 inquiries...